Ehlers-Danlos and Chiari networking in Switzerland ....

Last activity 16 January 2012 by Jeviensdusud

1475 Views

2 replies

Post new topic

BertrandGenèveMember27 November 2011 15:55:34

A bit of a strange post, but I do it to help a friend of mine.

She's a Canadian expat who came in Geneva with her parents (that would be more correct to say that her parents brought her here).
She's got an Ehlers-Danlos syndrome and an Arnold-Chiari malformation and I'm trying to find other people who could have it too in Switzerland (and who speak English) so they could share information. We are already in contact with a Swiss woman living in the Swiss-German part.

We're also on facebook, but much of the people are in the UK, in the USA or Canada (we actually made a group facebook.com/groups/162271097198319/

So, if you know of somebody....

(to the mod : it's OK if you delete this post, but I had to post it...)

ChristineViP28 November 2011 06:47:38

42879

Hi BertrandGenève,

I hope you will get lot of contacts here.

All the best,
Christine

JeviensdusudActive member16 January 2012 19:41:23

Hi BertrandGenève,

Here is a MD, Dr. Scarlet Huissoud in Fribourg, that you can contact. She knows about thit pathology and may be able to direct your friend to a support group though, in Switzerland, it is not recognized as being an invalidating condition :

http://www.les-medecins.ch/1725/5/50756 … detail.htm

Wishing the best to your friend.

Articles to help you in your expat project in Switzerland

Developing your social circle in Geneva
Having recently arrived in Geneva, you might initially feel a bit isolated. Although the city is relatively quiet ...
Choosing your neighborhood in Geneva
Geneva is a multicultural city, with nearly 50% of its workforce coming from abroad, especially in its many ...
Student life in Zurich
Despite being one of the most expensive cities in the world, Zurich provides a vibrant and dynamic atmosphere for ...
Choosing your neighborhood in Zurich
With a population of 1.4 million in 2024, Zurich is Switzerland's largest city and is divided into 12 ...
Work permits for Switzerland
If you plan to work in Switzerland for an extended period, you'll need a work permit, even if you're a ...
The work culture in Geneva
Although Geneva is close to France and very international, it has a distinct professional culture. Understanding ...
The labor market in Geneva
According to various economic studies reported by Swissinfo, Switzerland is expected to face a labor shortage of ...
The work culture in Zurich
Many expatriates are drawn to Zurich for its competitive salaries. If you're curious about the working ...