MOHCTEP wrote:Shame people let others linger and deteriorate to that state before their loved-one is dead. What is the point? Fear? Lack of options? Religiosity?
End of life is one of the major events people have the least control of. Few prepare for it, even fewer have plans on how they want to die. As if everyone were hoping for dying in their sleep at an age of 99-not gonna happen. Amazing really. There are options now in many EU countries and some US states. People don't have to go through torturous decline and yet few take action and make definitive plans on how long they should be left to suffer .....
I guess until government steps in and offers definitive choices nothing will happen in most countries.
End of life care currently is causing huge expense to the family : emotionally and financially and to add to that huge expense to the healthcare and tax base of the nation. And all of it needlessly and completely to no benefit of everyone involved.
Controversial stuff. Sure, Netherlands and Belgium allow it. But he was in the UK and there was nothing anyone could do. Certainly no religious reasons in the way as my bro was a devout (??) atheist. Very much a non-believer. He wasn't capable of determining his future any more. He was his brain and his brain became a jumbled mass of uselessly connected cells.
He was very well educated, multiple degrees, very senior in the business he worked in and internationally known by many in his field. He was very used to organising his family and himself so at first, he treated it as project. He was quick to sign over a Power of Attorney but this doesn't extend to giving relatives authority to indulge in euthanasia. That's still illegal in many places. Anyone helping him could have been charged with murder or manslaughter.
We did have a discussion about taking him to Switzerland on a final road trip but he would not have been able to answer any questions or signal his desires. He was too far gone by about the 6 or 7th month. Eventually he was hallucinating, behaving oddly and saying strange irrational things. He eventually ended up in a hospice (end of life care) where he stayed for a couple of weeks.
As for the healthcare towards the end, the universal public system in the UK, where he ended up, was absolutely superb and indeed free at the point of delivery. It cost nothing at all. Given the amount of tax he paid in his life and after, he certainly got some eway to his money's worth but even the largest amount of money in tax couldn't say his life unfortunately.
I had the opportunity to spend several weeks with him during his decline and we had some great chats. All he wanted was normality, even though our individual ideas of normality at that point were different. I wouldn't have had that opportunity if he'd taken the other way out.