Ehlers-Danlos and Chiari networking in Switzerland ....

A bit of a strange post, but I do it to help a friend of mine.

She's a Canadian expat who came in Geneva with her parents (that would be more correct to say that her parents brought her here).
She's got an Ehlers-Danlos syndrome and an Arnold-Chiari malformation and I'm trying to find other people who could have it too in Switzerland (and who speak English) so they could share information. We are already in contact with a Swiss woman living in the Swiss-German part.

We're also on facebook, but much of the people are in the UK, in the USA or Canada (we actually made a group facebook.com/groups/162271097198319/

So, if you know of somebody....


(to the mod : it's OK if you delete this post, but I had to post it...)